Patients with Autoimmune Disorders Indicate High Disease Impact on Quality of Life
Autoimmune disorders can be painful and often distressing, but autoimmune disorders are more distressing than others.
In a comparison of patient reported ratings on autoimmune disease impact on quality of life metrics, BioTrends Research Group found that patients with ankylosing spondylitis (AS) and Lupus/SLE (SLE) reported significantly higher impact on “Activities of Daily Living” and “Emotional Health” compared to patients with rheumatoid arthritis (RA) and psoriatic arthritis (PsA). All of the patients with autoimmune disease reported higher disease impact compared to patients suffering from gout, another condition covered in the PatientTrends series.
Leading up to diagnosis, patients reported struggling with symptoms for many months before receiving a diagnosis. About one-third of AS and PsA patients had symptoms for more than one year before being diagnosed and close to half of these patients saw more than two physicians before receiving a diagnosis. On average, AS patients were symptomatic for nearly three years, often receiving another diagnosis prior to AS. By comparison, PsA and RA patients were typically diagnosed within the first year of presentation and gout patients were diagnosed almost immediately.
The degree to which loved ones are involved in the care of these patients also varies by disease as does the extent to which the patients are active versus passive seekers of information. While the treating physician plays the lead role in providing disease information for all of the conditions, other sources also influence the patients in their awareness about their disease and treatment options.
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